Navigating a Hodgkin Lymphoma Diagnosis at 21

As the new year of 2026 began, I hoped it would offer a fresh start. At 21, I had faced significant grief and sought optimism for the future. Yet, the year had unexpected challenges in store for me.

Early Signs and Concerns

In January, during a routine visit to my doctor, a small lump was discovered in my neck. Initially, I wasn’t concerned; it seemed insignificant. The doctor considered an infection as a possible cause, given it was flu season. I was advised to return in six weeks if the lump persisted, so I did not worry much then.

Over the following weeks, I kept an eye on the lump, hoping it would disappear on its own. However, more than a month later, it grew larger. By mid-March, additional small lumps appeared, prompting a return visit to my doctor. The lumps were now suspected to be related to a recent infection or my chronic sinusitis. I was told to check back in six to eight weeks if things did not improve. By spring, there were at least seven lumps, changing in size, and new symptoms emerged: fatigue, itchy skin, night sweats, and unintentional weight loss.

Realizing this was not normal, I urged my doctor to take my concerns seriously.

Diagnosis and Treatment

In April, I was referred to a hospital’s head and neck clinic. The consultant agreed the lumps required assessment, and an ultrasound and biopsy were scheduled. Nervous yet hopeful for the best, I awaited the biopsy results.

Notification of the biopsy mentioning “Oxford lymphoma biopsy” created some confusion, as results were sent to Oxford for further analysis. Days later, I received emergency appointment calls, leading to panic.

At the hospital, a consultant confirmed the diagnosis: I had lymphoma. At 21, this news was world-shattering. Attempting to cope, I used humor during appointments but later found out the seriousness of my condition—stage two Hodgkin lymphoma. Restrictions followed, including canceled vacations.

Confronting Reality and Moving Forward

The initial weeks post-diagnosis were a blur of shock and disbelief. My treatment involved six rounds of chemotherapy. The side effects were severe: weakness, acid reflux, and heartburn. As my hair began to fall out, I chose to shave it.

By late July, a PET scan showed remission, confirming no active cancer. Chemotherapy plans were adjusted, leaving one more protocol. The end of treatment bell was nearly within reach.

Despite manageable health today, processing this reality remains challenging. Grief and cancer impacted me profoundly, yet I aspire to leave misfortunes behind and embrace healing.

I advise trusting your instincts concerning your health. If something feels wrong, like a sudden lump, seek medical evaluation.

Renee Coakes, now 22, advocates for Hodgkin lymphoma awareness on social media as @renegadesspamx on TikTok.